July 2010
Issue 3
Ka mohio ka whakatipu
Knowing is
Growing
Hello
Welcome to this quarterly Central Cancer Network
(CCN) newsletter. I trust you will find the updates of
interest.
This quarter has seen the departure of Ali
Hamlin and Caren Rangi, Service Improvement
Facilitators. Ali has accepted a position as Whanau Ora
Project Manager with Tui Ora in Taranaki and Caren has
returned to an auditing role. We wish them well for
their future endeavors and thank them for their contribution
to the network. We are currently recruiting to the
fulltime Inequalities position. Please click this link if you require more information about
this opportunity.
Please share this newsletter with your
colleagues and interested parties.
Jo Anson
Network Manager
Upcoming events
Regional Consumer Representative Forum -
Wellington, Saturday 31st July 2010
This is the second regional meeting of
individuals who have identified themselves as interested in
participating as Consumer Representatives across the CCN
region. Expected outcomes for the day include:
-
Attendees having an understanding of
statistics and epidemiology with respect to the CCN Health
Needs Assessment
-
Attendees having an understanding of the
work CCN is undertaking to reduce inequalities with respect
to cancer
-
Networking opportunities are enhanced and
shared learning supported
-
Attendees having an opportunity to develop
consumer related information pamphlets
For more information see the website or contact Stephanie Fletcher, Consumer Representative
Coordinator.
Updates on Current CCN Workplan
Central Region Palliative Care Network
(CRPCN) Forum - 4th June 2010, Palmerston
Nth
This regional palliative care forum saw 70+
attendees coming together to listen and interact with guest
presenters Professor Merryn Gott and Dr Michal Boyd. The
presentations by Professor Gott and Dr Boyd are available via
this link.
Attendees at the forum came from a range of
specialist and generalist palliative care providers across the
region and feedback on the programme was very positive. The
success of the forum has lead the CRPCN steering group to
consider an annual regional palliative care educational forum
with invited presenters.
For more information see the website or contact Jo
Anson, CCN Network Manager.
CCN Annual Work Plan for 2010/11
The draft annual work plan for 2010/2011 was
sent out to the wider stakeholder database for feedback and
comment and was also presented at various stakeholder meetings
to gain support and feedback. Feedback received has challenged
the team to look at the number and breadth of activities and
to prioritise these to ensure they can be delivered within the
resources available.
It has been agreed to keep the work plan in
draft until a meeting later in the year between the CCN
Governance group, DHB Cancer Managers Group and Chairs of the
local cancer networks. At this meeting the findings of
the CCNZ evaluation of the networks, the CCN Strategic Plan
and the draft Work Plan will be reviewed.
For more information contact Jo
Anson, CCN Network Manager.
Regional Lung Clinical Nurse Specialist (CNS)
Model
CCN sought feedback from nursing stakeholders
across the region on a proposal to develop a regional lung CNS
model. This proposal arose from recommendations within the
Regional Lung Report and is supported by funding from the MOH
Cancer Services Development Fund. Feedback from stakeholders
did not support the proposed project due to concerns around
building expectations for a model when there is no funding
currently to support it. The Directors of Nursing from
CCDHB and MDHB proposed that CCN consider a discussion
document on regional specialist cancer nursing roles in
general - this is currently being scoped.
For more information contact Shirlee McLean, Project Manager.
Regional Bowel Report and Implementation
Plan
The Regional Bowel Report has been completed and
will be presented to the Bowel Cancer Steering Group at the
beginning of August for their endorsement and to prioritise
the implementation plan. Following this the report and
implementation plan will be circulated to wider
stakeholders.
For more information see the website or contact Shirlee McLean, Project Manager.
Service Directory
CCN has commenced this project to develop an
e-based directory to provide information on cancer services,
supportive care services and palliative care services for
consumers, carers and service providers alike. This work is
supported by recommendations in the Supportive Care Guidance
and builds on activity in the Hutt / Wellington region on the
development of a paper based directory. The four regional
cancer networks are working collaboratively on the
functionality and design of the directory which will be hosted
and maintained by the networks.
An advisory group has been established to guide
the project and it is anticipated that the directory will be
available on line prior to Christmas.
|
Request for Information
To assist us to
identify as many service providers as possible who might
want to be included in this directory we would
appreciate receiving copies of any databases /
directories you may currently have developed.
Please send these to Stephanie Fletcher at Stephanie.fletcher@midcentraldhb.govt.nz |
For more information contact Stephanie Fletcher, Project Manager.
Multidisciplinary Meetings (MDM) Project
Work continues on supporting the efficient and
effective functioning of MDMs in the region, with an initial
focus on lung and bowel MDMs.
Updates:
-
Seeking support from the Regional Human
Resource Managers group to include reference to MDMs in
relevant position descriptions and job-sizing
activities.
-
Work continues with a private insurer to
include provision for access to an MDM opinion within their
policies.
-
Video conferencing (VC) suites are being
developed in Capital and Coast DHB and MidCentral DHB to
establish them as DHB video conferencing hubs. The
team will then work with the referring DHBs in the CCN
region to ensure active VC links to the hubs.
For more information see the website or contact Shirlee McLean, Project Manager.
Work Due for Completion in the next
Quarter:
-
Recruitment to the Inequalities Service
Improvement Facilitator position
-
Care Coordination Services Review
Guide
-
Regional Dental Forum
-
Lung and Bowel MDM Development
-
Medical Imaging Guidelines post
implementation review
-
Regional Cancer Control Indicators Report -
August 2010
International updates
International Collaboration in Cancer
Control
Betsy Marshall, Executive Director of the New
Zealand Cancer Control Trust participated in the 3rd
International Cancer Control Congress in Cernobbio, Italy 8th
- 11th November last year. Betsy has provided a report
that documents presentations and experiences that in her view,
"have particular relevance to New Zealand".
Betsy's very interesting report can be find by accessing this
link to the CCN website.
A 'kiwi' advocate perspective on the 2010
American Association of Cancer Research (AACR) meeting
In April 2010 Dr Christine Walsh attended the
Scientist - Survivor Program, as a sponsored consumer
representative. The programme was run in conjunction
with the 101st AACR meeting in Washington DC, USA. This
program offered advocates exposure to cutting-edge research
and unparalleled opportunities to meet prominent international
cancer researchers. Seventeen and a half thousand people
registered for the AACR meeting. Survivor programmes ran
alongside Scientific programmes, offering opportunity for
collaboration between the two groups.
'The
Special Interest Sessions for Survivors were
designed especially for advocates. There were choices
throughout the five days of attending the smaller advocate
only sessions or plunging out into the wider meeting to listen
to other presentations in the scientific program.'
Chris' full report on the meeting can be found
at this link.
National updates
National Bowel Cancer Programme
The Ministry of Health established a Bowel
Cancer Programme in 2009 to lead work aimed at improving bowel
cancer outcomes for all New Zealanders.
Updates:
-
-
The Bowel Cancer Programme now comes under
the wider cancer programme within the Ministry of Health
-
National Bowel Working Group - Discussions
continue regarding the formation of this national group to
support an initial focus on the development of a generic
bowel cancer pathway (including recommendations on a minimum
standard for investigation, treatment and ultimately
supportive care). An inaugural meeting is anticipated
early August with the inclusion of representation from the
regional network advisory groups
-
Stakeholders were invited to comment on the
Draft Service Delivery Model for the Bowel Screening Pilot
in June 2010
-
Dr David Theobald has been appointed as
National Clinical Lead for Gastrointestinal
Endoscopy
Supportive Care Guidance Implementation
Plan
Health Outcomes International (HOI) is leading
this work to identify the current levels and quality of
supportive care service provision across NZ to inform the
development of a national implementation plan. An
Implementation Working Group with membership from a wide range
of stakeholders has been convened and are currently working
with HOI to develop the project approach which is expected to
be agreed and communicated to stakeholders by the end of
August.
Evaluation of Regional Cancer Networks
Thank-you to those of you who completed the
Cancer Control New Zealand (CCNZ) on-line survey that is part
of the evaluation of the regional cancer networks -
there were over 100 received from the CCN region. The
completed report is due to be presented to CCNZ in September
and results will be made public after that.
Northern Cancer Network primary care and
secondary care national stock-take of services for people with
suspected lung cancer
This national stocktake of innovative services
is a key component of the current HRC_DHBNZ funded lung cancer
research project, distributed to all District Health Boards
and Primary Healthcare Organisations at the beginning of May.
The aim of stocktake is to identify services and initiatives
that could facilitate earlier diagnosis and improve care for
people with possible lung cancer and their family or whanau.
The services do not have to be specifically for people with
lung cancer, but should be potentially relevant to such
patients. Of particular interest are services that operate
prior to diagnosis, and especially those targeted to Maori,
Pacific and rural patients.
The Northern Cancer Network along with the
Expert Advisory Group and Inequalities Team working on the
project would like to thank those who have responded. With the
information you and others provide we hope to improve health
services for people with lung cancer and their family/whanua.
The stock take results will be reported nationally and used to
advise the recommendations for service change at the
completion of the study.
For further information please go to
www.northerncancernetwork.co.nz or if you wish to discuss the
survey, contact:
Melissa
Murray Gary
Thompson
Research
coordinator
Inequalities Project Manager
Northern Cancer
Network Northern
Cancer Network
09 923
5133 09
589 3918
District Updates
Addressing Inequalities Pilot Funding 09/10 for
Local Cancer Networks
CCN funded Local Cancer Networks $10K per
district from the 09/10 budget to undertake initiatives to
address inequalities in their area. Funding applications have
been received from each of the Local Cancer Networks in the
CCN region and initiatives have started.
-
MidCentral Local Cancer Network - developing
a patient information resource (Te Kete Ora) to enhance
Maori engagement and access to services at an earlier stage
of the cancer journey.
-
Taranaki Local Cancer Network - Delivery of
Demystifying Cancer Workshops to Maori communities across
the Taranaki region.
-
Whanganui Local Cancer Network - Workforce
development using the Demystifying Cancer approach,
including site visits. Mapping the Cancer Patient Journey
via three hui which will bring together communities and
providers.
-
Hawkes Bay Local Cancer Network - Delivery
of Demystifying Cancer workshops to communities in the
Hawkes Bay region (proposed).
-
Hutt Valley/ Wellington Local Cancer Network
- Demystifying Cancer for Maori communities workshops and
delivering a Demystifying Cancer for Pacific programme via
Wellington Access radio and Samoan Capital Radio.
-
Wairarapa Local Cancer Network - Delivery of
Demystifying Cancer workshops to communities in Wairarapa
and the development of a local information resource.
-
Tairawhiti Local Cancer Network - support an
understanding of the navigator positions within the region;
deliver Demystifying Cancer for Maori communities workshops;
workforce development to improve post-care urology
support.
CCN will share the results of each project as
they progress.
For more information see the website or contact Jo
Anson, CCN Network Manager.
Contact Details
Our postal address
is:
Visit our website
Central Cancer
Network
www.centralcancernetwork
C/- MidCentral
Health
for additional, up-to-date information
PO Box 2056
Palmerston North
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removed from the mailing list, or know someone who would like
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